Research & Advocacy

Amplifying BIPOC voices to transform cancer research and policy

Why BIPOC Experiences Are Missing

Traditional cancer research has systematically excluded BIPOC communities, leaving critical gaps in our understanding of cancer survivorship.

Less than 5% of cancer research participants are from BIPOC communities, yet these communities face higher mortality rates for many cancer types.

The unique challenges BIPOC survivors face—from cultural barriers to financial toxicity—are rarely captured in academic research.

When research excludes BIPOC voices, the policies and programs designed to help survivors fail to meet their actual needs.

A first-of-its-kind community-driven research project capturing the lived experiences of BIPOC cancer survivors across the United States.

Treatment experiences, financial challenges, cultural barriers, support gaps, and survivorship needs directly from BIPOC communities.

To inform advocacy, shape policy, educate healthcare providers, and guide our programs to better serve survivors.

This will become one of the largest storytelling archives of BIPOC cancer survivorship, making visible what has been invisible.

Are you a BIPOC cancer survivor? Share your experience to help change the future of cancer research and support.

The survey takes 15-20 minutes and covers your diagnosis experience, treatment journey, financial impact, and support needs.

Your responses are confidential and will be used to inform our State of BIPOC Cancer Report.

Preliminary findings from conversations with BIPOC survivors are already revealing critical gaps in care and support.

Nearly every BIPOC survivor we've spoken to has faced impossible choices between treatment and basic living expenses.

Language, trust in medical systems, and cultural stigma around cancer create obstacles to accessing care.

Survivors consistently report that community support—not just medical treatment—was essential to their healing.

Research without action is incomplete. We use survivor experiences to drive systemic change in cancer care and policy.

Working with lawmakers to create policies that address disparities in cancer care and survivorship support.

Training oncologists, nurses, and healthcare systems on the unique needs and barriers BIPOC survivors face.

Collaborating with academic institutions to ensure BIPOC voices are included in future cancer research.

Educating BIPOC communities about cancer prevention, early detection, and available resources.

Every story shared brings us closer to a more equitable future